Data management with the Opsci Data Wallet flips the data economy on its head and gives data sovereignty back to the creators - research participants - and empowers researchers with tools for interoperability, sharing, and reproducible workflows.
Neuroscience datasets are some of the most valuable in existence, in terms of the answers they contain about incurable diseases such as dementia, and human suffering such as depression and chronic pain. They’re often collected over many years, through hundreds of scientist hours and time volunteered by participants. Currently, most of these datasets are siloed in centralised databases (e.g. universities and hospitals) all over the world. In some cases, data may be kept on personal hard drives. Unleashing this data to build a data commons for global scientists have been met with resistance by misaligned incentive structures. Scientists are not incentivised to share their data open-source with their peers, nor are participants incentivised to take part in the research. As a consequence, this valuable data is vulnerable to loss and corruption, and scientific collaboration is difficult and participants hard to recruit. Furthermore, participants do not retain ownership over their data, and revoking consent/permissioning is high friction and complex process.
How it's made
- Simple secure user login using Metamask - Frictionless drag-and-drop file sharing experience in the front-end using ReactJS and NextJS to a secure data wallet hosted in Textile and IPFS - Scientific 'kudos' rewards using the POAP bot - Access Control Management of data - Todos: Automated data validation (data to adhere to BRAIN IMAGING DATA STRUCTURE (BIDS) standard)Technologies used